Adherence & Retention
Expanding on a community outreach program in rural Lesotho
Started by Ailis Tweed-Kent on 04 Nov 2008
Hi GHD Community,
I am a second year at Harvard Medical School, and work with a small organization called Touching Tiny Lives in Mokhotlong, Lesotho. The organization focuses on helping "one child at a time" by providing care in rural isolated areas. The TTL model targets orphaned and vulnerable children in the community and assists in social, medical, nutritional, and education needs. They bring HIV testing, education, and medical care directly into the home by providing medications, food, HIV testing kits, and formula to families with orphaned or vulnerable children. The sickest children are taken to a "safe home" located in Mokhotlong until they are healthy and able to be reintegrated with family or friends. On average, 6-8 children are in the safe home at any given time. Our families get medical care at the local hospital in Mokhotlong, or in their local community clinic.
Currently, most of the work is done through outreach workers/PMTCT staff who start their day at the safe home and then use vehicles to drive to and visit rural communities. They check on infants and mothers' health, deliver material goods, and do education. It takes hours to drive to the commmunities and outreach workers often only see a few families in a day. In order to reach and support more vulnerable children in a more efficient manner, we are hoping to develop a community health worker program with the workers residing in the communities rather than just visiting.
All staff are locally hired. The organization is young (started in 2004), but is growing rapidly and has assisted nearly 200 families through outreach. With signicant fundraising, TTL has the capacity to expand it's program from a community outreach model to a community health worker model.
We hope over the next year to develop and initiate a pilot program in one or two of the rural villages. In order to transition from our current outreach model to a PIH CHW model we are looking for advice. What are the most important factors we need to consider when choosing a pilot community? How should we expand our services--or do we continue to provide the same services (education, PMTCT, HIV testing, nutritional support, MUAC monitoring)? Does PIH usually do an initial widespread survey of the community to identify vulnerable children/families? What are important things to consider before initiating the community health worker model? How many families per community health worker? Do you have any other thoughts or advice on developing this program?
I realize these are general questions, but we want to make sure we think through the overall structure first before thinking about details. More information on the organzation can be found at www.touchingtinylives.org. We'd appreciate your insight on CHW program development. I am looking forward to the discussion.
Thanks!
Ailis
Keywords: Community Health Workers Food & Nutrition

Mona Haidar, MD, MPH
Welcome to the community Ailis!
expand commentThank you for sharing with us the great work you and your colleagues at TTL are doing.
Working with CHW and integrating them in your program will have tremendous impact on your work especially that outreach activities are a major component of your program. CHW can act as a vital link between your organization and the community and they can contribute immensely to health care delivery.
As you know, the CHW network already exists in Lesotho, they are referred to as village health workers. They are trusted members of the community , usually appointed by the chief of the village. The majority of the VHW are women, they know how to write and read and the training they received before PIH set their program was minimal. After launching the Know Your Status campaign, some of the VHW received training in counseling and HIV testing.
Your should try to define the role of the CHW in your program and the tasks you expect them to perform. Your program should consider providing training for the CHW on regular basis, PIH curriculum for CHW (available on PIH website) can be very useful in this regard. Also, it will be ...
10:13 PM, 6 Nov 2008 | Permalink
Joia Mukherjee, MD, MPH
Hi Ailis, thank you for posing this question: i can answer a few of your PIH specific questions: there are no "most important factors" in choosing a community--we have found that this approach works throughout diverse communities. We definitely do NOT do an initial community survey in the formal sense we do however, meet with groups of community health workers and patients informally to discuss the work. How many families per community health worker?--usually about 5 but depends heavily on how far away the families are.
There are some great materials in the community under the "Community Health Workers" topic (on the right) and we also have some great PIH training materials:
- Partners in Health Accompagnateur Curriculum: http://www.ghdonline.org/adherence/resource/pih-accompagnateur-curriculum/
- Partners in Health Community Health Worker Program: http://www.ghdonline.org/adherence/resource/partners-in-health-community-heal...
Jill Hackett can provide you more info on these as needed (she is a member of the community) and already her team has been requesting feedback on the PIH Model Online Community Health Worker Curriculum so if you happen to use this resource, please follow-up in this discussion:
http://www.ghdonline.org/adherence/discussion/feedback-on-pih-model-online-co....
10:39 AM, 7 Nov 2008 | Permalink
Joia Mukherjee, MD, MPH
i just included the link to the accompagnateurs guide..
http://model.pih.org/accompagnateurs_curriculum
under resources and have it here
10:48 AM, 7 Nov 2008 | Permalink
Sethelile Ntlhakana
Hi Ailis,
How many of this children are HIV positive or if there is any co-infection?
Thanks,Sthe
8:55 AM, 20 Nov 2008 | Permalink
Ailis Tweed-Kent
Hi! Thank you for all of your responses. I know that we have served children with HIV and with HIV and TB. I'll get back to you with more specific numbers once the TTL director responds. Thanks again.
9:37 PM, 24 Nov 2008 | Permalink
Rajesh Panjabi, MD, MPH
Hi Ailis --
It's wonderful to read about your efforts in Lesotho. I help direct Tiyatien Health (http://www.tiyatienhealth.org), a community-based, social justice organization that has adapted some of PIH CHW models to provide DOT-HAART and accompaniment in rural Liberia. We've been working with the Government of Liberia to rollout its first rural public ART program, the HIV Equity Initiative, at a district hospital in Zwedru.
I'll echo responses from Mona and Joia: we've found employing community health workers and pairing them with socioeconomic support to have a tremendous impact on not only health and socioeconomic outcomes among our patients and communities in rural Liberia. So, we're thrilled to hear you are considering them in your own program.
Our programs are designed and run by Liberian community members and health professionals. We find the attached form, describing our CHWs (called "accompaniers") roles and responsibilites, to be helpful in presenting some of the "nuts and bolts" of the interventions we use. As you can tell, these were also shaped based on PIH's experiences in Rwanda and Haiti.
Hope this helps! Happy to chat more.
good luck!
3:12 PM, 17 Dec 2008 | Permalink