Adherence & Retention

Hi all,

With help from Jean Nachega we found the following articles addressing the question of treatment refusal/non adherence, from both medical and social science journals.

Best, Anat

Blandine Bila and Marc Egrot (2009) Gender asymmetry in healthcare-facility attendance
of people living with HIV/AIDS in Burkina Faso Social Science & Medicine 69:854–861

Priscilla S. Dlamini et al. (2009) HIV Stigma and Missed Medications in HIV-Positive People in Five African Countries AIDS Patient Care STDS. 23(5): 377–387 (open access: www.ncbi.nlm.nih.gov/pmc/articles/PMC2716129/ ).

Jittimanee SX, Nateniyom S, Kittikraisak W, Burapat C, Akksilp S, et al. (2009) Social Stigma and Knowledge of Tuberculosis and HIV among Patients with Both Diseases in Thailand. PLoS ONE 4(7): e6360. doi:10.1371/journal.pone.0006360. (open access: http://www.plosone.org/article/info:doi%2F10.1371%2Fjournal.pone.0006360 ).

Sophie Le Coeur, Intira J. Collins, Julie Pannetier, Eva Lelie`vre (2009) Gender and access to HIV testing and antiretroviral treatments in Thailand: Why do women have more and earlier access? Social Science & Medicine 69: 846–853.

Makoae, Lucy N. , Portillo, Carmen J. , Uys, Leana R. , Dlamini, Priscilla S. , Greeff, Minrie , Chirwa, Maureen , Kohi, Thecla W ...

Hi all,

With help from Jean Nachega we found the following articles addressing the question of treatment refusal/non adherence, from both medical and social science journals.

Best, Anat

Blandine Bila and Marc Egrot (2009) Gender asymmetry in healthcare-facility attendance
of people living with HIV/AIDS in Burkina Faso Social Science & Medicine 69:854–861

Priscilla S. Dlamini et al. (2009) HIV Stigma and Missed Medications in HIV-Positive People in Five African Countries AIDS Patient Care STDS. 23(5): 377–387 (open access: www.ncbi.nlm.nih.gov/pmc/articles/PMC2716129/ ).

Jittimanee SX, Nateniyom S, Kittikraisak W, Burapat C, Akksilp S, et al. (2009) Social Stigma and Knowledge of Tuberculosis and HIV among Patients with Both Diseases in Thailand. PLoS ONE 4(7): e6360. doi:10.1371/journal.pone.0006360. (open access: http://www.plosone.org/article/info:doi%2F10.1371%2Fjournal.pone.0006360 ).

Sophie Le Coeur, Intira J. Collins, Julie Pannetier, Eva Lelie`vre (2009) Gender and access to HIV testing and antiretroviral treatments in Thailand: Why do women have more and earlier access? Social Science & Medicine 69: 846–853.

Makoae, Lucy N. , Portillo, Carmen J. , Uys, Leana R. , Dlamini, Priscilla S. , Greeff, Minrie , Chirwa, Maureen , Kohi, Thecla W. , Naidoo, Joanne , Mullan, Joseph , Wantland, Dean , Durrheim, Kevin andHolzemer,William L.(2009) 'The impact of taking or not taking ARVs on HIV stigma as reported by persons living with HIV infection in five African countries', AIDS Care, 21: 11, 1357 — 1362.

Sara L. Nama, Katherine Fielding, Ava Avalos, Diana Dickinson, Tendani Gaolathe , P. Wenzel Geissler (2008) The relationship of acceptance or denial of HIV-status to antiretroviral adherence among adult HIV patients in urban Botswana Social Science & Medicine 67:301–310.

Young, Sean D. and Bendavid, Eran (2010) 'The relationship between HIV testing, stigma, and health service usage', AIDS Care, 22: 3, 373 — 380.

Jessica,
Our group is working on a model drawing from the Information, Motivation, Behavioral Skills model for HIV care initiation and maintenance and we've been gathering qualitative data in NY to inform the model (Laramie Smith will be presenting her results on this at IAPAC this year). To get interviews with people tenuously engaged in care, she frequently went out to transient housing and parks.

But that was in NY with the collaboration of outreach workers who knew the terrain. I would imagine that there are similar pockets to explore via outreach in Vietnam. I wonder as well how people were recruited for the ARTAS study? Perhaps some strategies are applicable?

I look forward to learning more from your findings.

Rivet

Dear All
At my surprise there are vanishingly little qualitative or quantitative data published about patient reported reasons for HIV treatment refusal. From our own experience in Africa, it is possible that the same factors that affect VCT uptake or/and ART adherence (stigma, structural barriers, misinformation/ignorance, health services perceptions, etc.) may also be at play here. We and others have looked at stigma impact on VCT and ART adherence in Africa and there is more info there BUT I am not sure whether one can extrapolate. Few years back, you may have probably came across selected media reports from South Africa that some ART eligible HIV+ patients were refusing to start or continue ART because they were misinformed about its benefits by HIV denial/dissident groups. Hard data from industrialized and resource-limited settings on this important, relevant and topical issue will be very much welcome here as they are likely to informative and guide possible targeted interventions.
All the best,
Jean