Hi all,
I was wondering if any of the members have experience with (or knowledge of) research on training staff and parents on issues of adherence in children.
Claude Mellins and I recently wrote a review article on this topic (abstract below). It's not a practical manual, but I think it provides a nice framework for considering the key issues. The issue focuses on ART, but has relevance for other chronic diseases. I'd be happy to send anyone a full copy of the article, if you can't access it through your institution.
Regards,
Jessica
Curr HIV/AIDS Rep. 2009 Nov;6(4):194-200.
Pediatric adherence to HIV antiretroviral therapy.
Haberer J, Mellins C.
More than 2 million children are infected with HIV globally. Pediatric antiretroviral therapy (ART) adherence is complex, and current levels are often suboptimal. As established treatment programs in developed settings struggle with chronic therapy and nascent treatment programs in resource-limited settings expand, the importance and challenges of good adherence to ART are becoming ever more clear. Adherence behavior is influenced by many factors, which may be categorized as characteristics of the child, the caregiver(s) and family, the regimen, and society and culture. Many of these influences complicate measurement of pediatric adherence, and there is no gold standard. This article provides a conceptual framework and evidence-based look at the factors ...
Claude Mellins and I recently wrote a review article on this topic (abstract below). It's not a practical manual, but I think it provides a nice framework for considering the key issues. The issue focuses on ART, but has relevance for other chronic diseases. I'd be happy to send anyone a full copy of the article, if you can't access it through your institution.
Regards,
Jessica
Curr HIV/AIDS Rep. 2009 Nov;6(4):194-200.
Pediatric adherence to HIV antiretroviral therapy.
Haberer J, Mellins C.
More than 2 million children are infected with HIV globally. Pediatric antiretroviral therapy (ART) adherence is complex, and current levels are often suboptimal. As established treatment programs in developed settings struggle with chronic therapy and nascent treatment programs in resource-limited settings expand, the importance and challenges of good adherence to ART are becoming ever more clear. Adherence behavior is influenced by many factors, which may be categorized as characteristics of the child, the caregiver(s) and family, the regimen, and society and culture. Many of these influences complicate measurement of pediatric adherence, and there is no gold standard. This article provides a conceptual framework and evidence-based look at the factors influencing ART adherence in children and aims to identify areas for intervention for this vulnerable population in need.
Hi Jessica and all,
Thank you for the reference, it was very helpful. Does anyone have any experience in training parents/staff or is able to share training materials?
Jessica Haberer, MD, MS
Hi Anat,
expand commentClaude Mellins and I recently wrote a review article on this topic (abstract below). It's not a practical manual, but I think it provides a nice framework for considering the key issues. The issue focuses on ART, but has relevance for other chronic diseases. I'd be happy to send anyone a full copy of the article, if you can't access it through your institution.
Regards,
Jessica
Curr HIV/AIDS Rep. 2009 Nov;6(4):194-200.
Pediatric adherence to HIV antiretroviral therapy.
Haberer J, Mellins C.
More than 2 million children are infected with HIV globally. Pediatric antiretroviral therapy (ART) adherence is complex, and current levels are often suboptimal. As established treatment programs in developed settings struggle with chronic therapy and nascent treatment programs in resource-limited settings expand, the importance and challenges of good adherence to ART are becoming ever more clear. Adherence behavior is influenced by many factors, which may be categorized as characteristics of the child, the caregiver(s) and family, the regimen, and society and culture. Many of these influences complicate measurement of pediatric adherence, and there is no gold standard. This article provides a conceptual framework and evidence-based look at the factors ...
12:56 PM, 14 Dec 2009 | Permalink
Anat Rosenthal, PhD
Hi Jessica and all,
Thank you for the reference, it was very helpful. Does anyone have any experience in training parents/staff or is able to share training materials?
Many thanks and happy new year!
Anat
12:19 PM, 5 Jan 2010 | Permalink