Young Professionals Chronic Disease Network

Hi Abbie,

I am a cardiology fellow with some experience treating patients with
infiltrative cardiomyopathies, including amyloidosis.

Boston U has a program for these patients:
http://www.bu.edu/amyloid/resources/physician-resources/clinical-al/

I would start there. If you have any questions I would be happy to help.

Best,

Mazen Albaghdadi
Cardiology Fellow
Physician-Scientist Training Program
Masters of Science in Clinical Investigation Candidate
Northwestern University

Hi Abby,

Matt Maurer is a heart failure specialist at Columbia who follows a "large"
cohort of patients with TTR amyloid and is involved with clinical trials.
Let me know if you want me to put you in touch. My email is
.

Best,
Jenn

*****
Jennifer Lewey, MD
Cardiology Fellow
Columbia University Medical Center

Hi Abby,

I am a current cardiology fellow at Boston University/Boston Medical Center
which, along with the Mayo Clinic, is a national referral center for
patients with any time of Amyloidisis. Our cardiology section is part of an
integrated multi-disciplinary team along with the hematology division. I
can put you in touch with our cardiac amyloid specialists.

Cheers,
Gene

Dr. Rodney Falk in Boston is an international expert. "Falk, Rodney H.,M.D." <>

any other questions feel fre to contact me at

Thanks very much, all!!

Boston University, one of two centers of excellence in all types of amyloidosis in the US is doing a study on Cardiac TTR and the ILE 122 variant. See Lawreen Connors or contact her at http://www.bu.edu/amyloid/lawreen-h-connors-ph-d/ . Dr Mat Maurer at Columbia Univ is also working on this type as well as Martha Grogan MD at Mayo/Rochester.
Muriel Finkel
Amyloidosis Support Groups Inc.
www.amyloidosissupport.org