Idea submitted by: Peter Pennefather
Patient should find chronic medication management for chronic disease AMUSEing – an Agreeable, Meaningful, Universal, Salutogenesis, Experience.
This can be fostered through a patient narrative extensions to eHealth record systems. That extension would allow construction of a record of the patient's experience in a story form meaningful to both patient and care provider. Content analysis can then be used to translate the story into data meaningful to eHealth platforms.
That process can be enabled using a real-time transcription process combining both machine and human transcription. It would be guided by a structured interview strategy focusing on whether the medication management process is:
1) Agreeable being “to-their-liking” and something they can be compliant with;
2) Meaningful in that patients agree with the content of the real-time transcription before it is entered into the record;
3) Universal in that the process can resiliently respond to unique and complex barriers faced by patients, especially marginalized ones, and adaptively spring forward in ways that benefit all;
4) Salutogenic – conducive to the promotion of health and well-being as established using validated survey question measuring well-being attributes;
5) Experiential in that what is managed is the overall experience of patient wellbeing.
That experience and its evolution can be recalled by the patient but also indexed, de-identified, aggregated and analyzed allowing trends and lessons to be learnt.