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TAGline: Nothing About Us Without Us

By Erica Lessem | 02 May, 2019

*Apologies for duplicates/cross-posting*

<https://default.salsalabs.org/T2d9f5951-8d50-4941-b4a0-5329f2cf846b/13482976-...>

*Nothing About Us Without Us: Community Engagement in Research to End the
Epidemics*

This *TAGline
<https://default.salsalabs.org/T018d8ae4-bcb2-4f9a-b109-6680a1137b1f/13482976-...
is all about the importance of community engagement in research to end the
epidemics of HIV, HCV, and TB. As this edition’s cover shows, protestors at
the “Storm the NIH” demonstration and die-in in May 1990 demanded political
will and funding for research, and equitable access to treatment for HIV.
This bold and knowledgeable action brought about a massive increase to
investment in HIV research, and extensive changes to how AIDS clinical
trials were conducted.

This and other actions of ACT UP, TAG, and other HIV activists have proved
how important it is to meaningfully involve affected communities in each
step of the planning and conduct of the research itself. They showed that
their goal of “nothing about us without us” could be a reality. TAG’s work
continues to perpetuate progress towards this end every single day.

In this issue of *TAGline
<https://default.salsalabs.org/Tced5f631-0e0b-40b9-a4f3-62a7d0e86b22/13482976-...>
*you'll find:

*Nothing About Us Without Us: Community Engagement in Research to End the
Epidemics
<https://default.salsalabs.org/T1d39bb73-8d42-4ea2-9042-c65f9a705213/13482976-...
By Erica Lessem

*Act Up. Fight Back. Fight TB: Potential Pathways to R&D Funding Advocacy
for the U.S. TB Community
<https://default.salsalabs.org/T873bd13f-2056-46d2-a3bf-8732812d1a1b/13482976-...
By Elizabeth Lovinger and Suraj Madoori

*From Engagement to Leadership: Placing Community Priorities at the Heart
of HIV Prevention Research
<https://default.salsalabs.org/T81b4ffea-e473-4b56-8a43-69c5c8af807b/13482976-...
By Jeremiah Johnson

*Sound Off: Three Activists Reflect on Community Victories and Priorities
in TB Research
<https://default.salsalabs.org/Tbe5c9c18-a81c-482f-893e-0d9ab26cb8b5/13482976-...
By Mike Frick and Lindsay McKenna

*Scientific Complexity and Ethical Uncertainties: The Importance of
Community Engagement in HIV Cure Research
<https://default.salsalabs.org/Tce148e47-262c-4254-a0a1-7ec9dccbc94d/13482976-...
By Richard Jefferys

*The Final Frontier: Breaking Down Barriers to Community Engagement in
Diagnostics Research
<https://default.salsalabs.org/Tf7fb0fce-5ffc-4661-8a83-4ac09e83f1f0/13482976-...
By Erica Lessem and Stacey Hannah

TAG has its roots in ACT UP and activism, so this is a very special
*TAGline* for us. We hope you’ll find it as inspiring to read as we did to
write.
<https://default.salsalabs.org/T59ee61cb-e8db-40f8-97a0-dd38f4e91f6e/13482976-...>

*Contact Us:* Treatment Action Group, 90 Broad Street, Suite 2503, New
York, New York 10004, 212-253-7922.
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<https://default.salsalabs.org/Tee47d29a-f6f1-48f2-849a-a55937cae75d/13482976-...
. This year marks TAG's 27th year fighting for life-saving medications for
people living with, and at risk for, HIV, TB, and HCV. Please consider
supporting this work by making a *donation*
<https://default.salsalabs.org/T00c90f2b-f544-4edf-9e00-52d404453573/13482976-...>
today.
<https://default.salsalabs.org/Td3e84dec-ff31-4e89-9b72-97c11f2547a0/13482976-...>
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