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Fwd: Public call for individual patient data on treatment of drug-resistant tuberculosis

By Erica Lessem | 01 Aug, 2019

Apologies for cross-posting--
Please see this call from WHO for individual patient data on drug-resistant
TB treatment outcomes.

The more data the WHO receives, the more data-driven and useful their
recommendations can be.

Please contribute data to this effort or forward to someone who can !

Thank you,
Erica

---------- Forwarded message ---------
From: WHO Global TB Programme <>
Date: Thu, Aug 1, 2019 at 12:53 PM
Subject: Public call for individual patient data on treatment of
drug-resistant tuberculosis
To: <>


Public call for individual patient data on treatment of drug-resistant
tuberculosis
Latest news from the WHO Global TB Programme
View this email in your browser
<https://mailchi.mp/who/callfordata?e=7ee3c382e8>
*Public call for individual patient data on treatment of drug-resistant
tuberculosis*

01 August 2019 | Geneva: WHO is initiating the development of new
guidelines on the treatment of drug-resistant tuberculosis (TB) following
new evidence made available this year. The last evidence-based guidance for
the treatment of rifampicin-resistant and multidrug-resistant TB
(MDR/RR-TB) was published by WHO in December 2018.

Ahead of the guidelines development group meeting, planned in November
2019, WHO will commission reviews of relevant evidence on the effect of
different treatment regimens on patient outcomes.

To enable this process, WHO is issuing a public call, appealing to
industry, researchers, national TB programmes and other agencies to provide
suitable datasets.

The request is for individual patients’ data on MDR/RR TB patients with the
following specifics:

   1. use of bedaquiline for longer than 6 months as a part of longer
   treatment regimens
   2. use of all oral bedaquiline-containing shorter regimens of 9-12
   months duration
   3. concurrent use of bedaquiline and delamanid
   4. use of bedaquiline-containing regimens in pregnant women

The data will be essential to facilitate the process of WHO policy updates.
Please let us know if you have data to contribute by *10 August 2019*.
The completed dataset in the requested format should be submitted with the
signed data sharing agreement by* 15 August 2019.*

More information on the requirements of the datasets, variables, the
process, deadlines and contacts is available here
<https://who.us8.list-manage.com/track/click?u=f093a7c38a3780cd9504f8d9d&id=c2...>
.
*World Health Organization, *
*Global TB Programme*
20, Avenue Appia,
<https://www.google.com/maps/search/20,+Avenue+Appia,+CH?entry=gmail&source=g>
 CH
<https://www.google.com/maps/search/20,+Avenue+Appia,+CH?entry=gmail&source=g>...,
Geneva,
Switzerland
Tel: (+41) 22 791 4695.
Email:
For more information please go to
*www.who.int/tb*
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